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Education 2

Saturday October 21, 2023 - 09:00 to 10:00

Room: Jasmine C

312.2 A National guideline for pediatric organ donation

Karin Franzén, Sweden

Programme Officer, PhD
Department for Knowledge based Policy of Health Care
The National Board of Health and Welfare

Abstract

A National guideline for pediatric organ donation

Karin Franzén1, Anna Aldehag1, Josefina Meyer1, Fredrik Hugosson1.

1Department for Knowledge-Based policy of Health Care, The National Board of Health and Welfare, Stockholm, Sweden

Introduction: The National Board of Health and Welfare in Sweden is a government agency under the Ministry of Health and Social Affairs, and one of our duties is to promote organ donation and transplantation.
In Sweden, as in many other countries, there is an extensive need for pediatric organs. National statistics in January 2023 show that there were 17 children aged 0-18 on the Swedish transplant waiting list. In 2022, one child died while waiting for a transplant and another five children were removed from the waiting list because they were deemed as being in too poor condition to undergo a transplantation. National donation figures showed that seven children, one under the age of six, became organ donors in 2022. Organ donation from a child is an uncommon occurrence, and the health care personnel are often not trained enough to identified a potential organ donator and not adequately educated to approach the parents. 
Method: The aim of the National guidelines, published in January 2022, was to increase pediatric organ donation so that more children will get the possibility to undergo a life-saving transplantation. Due to the lack of research studies, the method to produce the National guideline was accomplished by consensus procedure and priority of recommendations with care givers in the pediatric field.
Results: The National guideline consists of five national recommendations to support and educated the health care personnel. The recommendations focus mainly on giving adequate information and support to the parents who are about to lose their child. 
Conclusion: The National Board of Health and Welfare in Sweden is supporting the health care providers in the implementation of these recommendations. We are currently producing short movies to support the health care personnel to feel capable and confident in managing different emotional reaction patterns of the parents. In addition, we are producing manuscripts for local scenario training in hospitals. We believe that the National guideline will contribute to a positive donation outcome, with the endpoint result that more children will receive a life-saving transplantation. We are continuously monitoring the donation and transplantation statistics of children in Sweden to be able to see the results of our work.

Presentations by Karin Franzén

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